I have the weight of the world on me at the moment. Once again a full plate and no appetite. My writing has suffered, which means I have suffered.
When I can't, due to other obligations, write to my hearts desire, my emotional state suffers greatly. Last night, after receiving two pieces of bad news in the mail, Al and I went out into the garden.
Watching this place come back into full bloom is by far one of the most spiritual experiences of my life. Remembering how dead it was when we first took occupancy in August. Burt outright from last summers scorching triple digit heat. Having been left here alone to die.
We watered and watched, said some little prayers under our breath...and lo and behold some roses bloomed, thinking all the while spring had come again. The true Spring we never experienced, the explosion of green, brilliant hues, colors only a woman could create...ah ha!
Last night, after two days of on and off torrential rains, Al and I dug our fingers down into our mother, lovingly, as if to eat a pie homemade, having cooled to the touch barely, without the use of utensils. This soil is fertile. "Perhaps" Al said to me, "Perhaps this soil is so good, a dead thing could be buried in it and come back alive"
"Perhaps. Perhaps this soil is so good a dead thing could be buried in it, and not WANT to come back to life" We have these strange conversations, unusual enough to someone looking in, that a point of concern might be taken. They would be welcome to join our "What if" game...sometimes it's even better when more than two play.
I wear his shirts, he wears my jewelry...he knows I am his mother, oedipal is out numbered. Before I became a mother, maybe six years or so, I had a white Persian cat named Oedi, Oedi-puss. Oedi had issues, sexual issues.
Oedi would masturbate on my pillow just above my head. This bothered me. Not because he was masturbating, but because his kitty batter would get in my hair.
Then Oedi came down with a severe case of stud tail, in which all of Oedi's hair fell out of his tail, leaving behind huge black heads in place of hair. Appetizing.
Oedi went to the vet a lot. I loved Oedi, Oedi was my child. My child with a zittty tail who masturbated on my head. Oedi was a casualty of Al's vindictive Uncle Victor. A man who hates all living things, unless you are a pre-pubescent female. He gave away all my pets while I was chasing the dragon, as if having a potentially fatal disease isn't horrific enough...let's give away her pets too!
The garden reminds me, we are always coming back, regenerating, remembering, renewing our vows to grow. I always feel uncomfortable writing about Al here, in light of losing his sister, in light of our custody proceedings with The Sea Monster, in light of the fact he's a tiny angel, innocent and pure.
Writing about Al's limitations, challenges that categorized all disabled people as "Special" in the '80's...feels wrong. Sometimes the pull to share in what may be helping someone else though, feels more right.
If you have a special needs child, I know the daily struggle seems like more than you can bear at times. Heck, if you have a CHILD know it seems like more than you can bear. If you have a GOOD partner to raise these kiddos, you are blessed beyond all imagination. If your doing it by yourself, you should be listed among the saints of Mothering. Right up there with -
Jacqueline Kennedy Onassis
Anne Morrow Lindbergh
Mary Wollstonecraft
Mother Theresa
I believe we are just as valuable, yet not nearly as valued.We have to see our worth through God's eyes, knowing each time we dig in the dirt with our kids, each time we just let go of controlling every situation lest the sky fall...were maintaining adequate room for little wings to be stretched.
Theirs and ours.


















Recent Comments